Wednesday, March 13, 2013

Update So Soon

**taken from my email on Thursday 3/7/13 at 11:19pm**

Hi all,
I didn't expect to have an update so soon and unfortunately it is not a good one. Please forward on as needed. Kyleigh saw a pediatric cardiologist today because an earlier X-ray showed an enlarged heart and the nurses heard a heart murmur. She had an echocardiogram which showed that Kyleigh has a congenital heart defect. There are a crazy amount of medical details that I could tell but most of them are a blur to me at this point. The main point is that there are two relatively large holes in her heart. One between the two atriums and one between the two ventricles. This is causing the oxygenated blood that is supposed to circulate throughout her body to mix with the non-oxygenated blood that should be going to her lungs. The good news is that this is not life threatening or critical at this point. More information is needed about what genetic abnormality exists to determine a specific plan of action.  The bad news is that Kyleigh almost definitely will need heart surgery to repair the defects.  The big question is when.  It is possible that she may need this surgery in the next 6-8 weeks, but depending on how well she develops and what all the other tests show, she may be able to wait until she is a little older to have the surgery.  So needless to say, please keep the prayers coming. Kyleigh is comfortable, and actually progressing (slowly) with feeding. Mommy might be discharged tomorrow but Kyleigh will be in the hospital for at least another week. Thank you all for the supportive texts and emails. Bridgette and I are taking turns with having "our moments", and to say we are scared and confused would be an understatement. Knowing you all are praying for us and Kyleigh is very comforting.

By the way, big brother Kevin has met his little sister and he is VERY protective. He is doing fine and loving his sleepovers with Auntie Kim at Grandma and Papa's house.

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